Caution: JavaScript execution is disabled in your browser or for this website. You may not be able to answer all questions in this survey. Please, verify your browser parameters.

Priority Setting Partnership for the Most Premature Babies

Have you ever had a question about the most premature babies born before 25 weeks of gestation (i.e. around 4 months early) during their hospital admission? 

Over the last decade, more and more babies born before 25 weeks' gestation (i.e. more than 4 months earlier) are being looked after in neonatal units, and more and more are surviving. To date, there have not been many research studies that have included nor focused on these babies, and it is unclear how they and their families should best be looked after.

Current research is not relevant in to this population as this group of babies are very different to slightly older premature babies.

We are therefore undertaking this survey to try to work out what the most important questions are that need answering in this group of babies.

We’re asking you to submit the most pressing questions that you feel need to be answered about:

  • The treatment and care of the most premature babies, born before 25 weeks of gestation (i.e. around 4 months early), during their hospital admission
  • The mental health and wellbeing of parents/carers/families of the most premature of babies
  • Other relevant areas/aspects that could benefit from research 

Your questions will help us find important areas to research in order to improve the healthcare, outcomes and wellbeing of these babies and their families.

We want ideas and thoughts from people with different experiences and backgrounds such as parents, patients and healthcare professionals.

This survey is the first step in collecting your questions. It will be followed by a second survey to prioritize the questions that are received. We will share the final “Top 10” list of unanswered questions directly with researchers and research funders to encourage them to focus on the most urgent needs in this area of healthcare. Those who have taken part in the survey will also receive the results.

The survey will be open until 31 January 2023.

If you would like more information about why the survey is being run and what it is asking, please go to:


Most Premature Babies Priority Setting Partnership (PSP) website

This survey has been initiated and is conducted by the INPRES Partnership. INPRES (the International Perinatal Research Partnership) is a partnership between the Murdoch Children’s Research Institute’s (MCRI) Melbourne Children’s Trials Centre (MCTC) and the University of Oxford’s National Perinatal Epidemiology Unit (NPEU) Clinical Trials Unit. Our vision is to form a collaboration which improves the health of newborn infants and their families, through high-quality research, whereby the productivity of the collaboration is greater than the sum of the individual centres.

You may save and exit the survey to resume at a later time (click 'Resume later' at the top of the page).

This survey is anonymous.

The record of your survey responses does not contain any identifying information about you, unless a specific survey question explicitly asked for it.

If you used an identifying access code to access this survey, please rest assured that this code will not be stored together with your responses. It is managed in a separate database and will only be updated to indicate whether you did (or did not) complete this survey. There is no way of matching identification access codes with survey responses.